Free Downloads

Difficult Conversations for Heart Failure

NCPC
May 2014

Making it easier to talk about the end of life with people affected by heart failure.

This guidance, funded and supported by the British Heart Foundation, aims to help anyone caring for someone with Heart Failure to open up conversations about end of life wishes and preferences, in order to enhance quality of life. It is based on conversations with more than sixty people affected by Heart Failure: people with Heart Failure, carers and former carers.

MDS Full Report for the year 2012-13

NCPC
June 2014

Health and Wellbeing Report

HTH & NCPC
September 2014

Mapping England’s Health and Wellbeing Boards’ vision for dying people

The crisis facing terminally ill people and their families

September 2014

A joint briefing co-produced by

NCPC

Cicely Saunders International

Hospice UK (formerly Help the Hospices)

Macmillan Cancer Support

Marie Curie Cancer Care

Motor Neurone Disease Association (MND Association)

Sue Ryder

NCPC Specialist Palliative Care Workforce Survey 2013

NCPC | Public Health England | Mouchel
October 2014

A Specialist Palliative Care Longitudinal Survey of English Strategic Clinical Networks.

Deprivation of Liberty Safeguards: an update for hospices

Hospice UK and NCPC
November 2014

A briefing for all staff and volunteers providing hospice care as the people they support are likely to be protected by the Mental Capacity Act (2005) and the Deprivation of Liberty Safeguards (DoLS).

This document has been jointly produced by Hospice UK and NCPC.

Workshop Choices

Beth Lloyd-Williams
December 2014

Difficult Conversations for Young Adults

NCPC
February 2015

This guide was developed in response to a gap in health professionals’ skills in having difficult conversations with the growing number of young adults with life-limiting conditions who come in to their care. This gap was one of the findings of the STEPP research project (a project which looked at examples of positive practice in transition to adult health settings for young adults with life-limiting conditions). 

It aims to support professionals to improve quality of life and provide peace of mind for young people and their families, by sharing insights from young people themselves and their families about discussing the end of life. The guide describes feelings they experience when having conversations on this sensitive subject and gives ideas about how to approach it. It also aims to be a useful prompt that young people can use to broach the subject of end of life planning with family, friends and professionals.

Better care at the end of life

NCPC, Cicely Saunders International, Hospice UK, Macmillan, Marie Curie, MND Association, Sue Ryder
February 2015

Joint briefing produced by NCPC, along with six other leading charities, campaigning for improvements in end of life care:

Cicely Saunders International

Hospice UK

Macmillan Cancer Support

Marie Curie Cancer Care

MND Association

Sue Ryder

What's Important To Me - Executive Summary

The Choice in End of Life Care Programme Board
February 2015

A review of choice in end of life care - Executive Summary of full report.