Press Release
The National Council for Palliative Care and the Dying Matters Coalition respond to the publication of the End of Life Care Strategy Second Annual Report.
Good progress, but a lot more to do...
A great deal has already been achieved, but there remains much more to do. This is the message of the second annual report on the End of Life Care Strategy, published this week. Progress has been made both nationally and regionally across a range of areas, but the report emphasises the importance of improving end of life care in an increasingly challenging economic climate.
Continued...

Publication
Experiences of people with neurological conditions in hospital
NCPC’s Neurological Conditions Group carried out a survey of the experiences of people with neurological conditions admitted to hospital. Although the study involved a small sample size, the data received indicated that nearly two thirds of respondents were not asked whether they had an advance care plan or ADRT during their stay in hospital. Other concerns relating to a perceived lack of communication, dignity and understanding of the condition the person had, were reported.
A summary of the results and the group’s recommendations can be downloaded here.

Publication
Getting started
Involving People with Personal Experience
This document is a brief, introductory guide to user involvement in end of life care. It aims to show why it's important to involve people, potential benefits and how to get started. It is based on learning from NCPC's user involvement project 2007-2010.
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Publication
Small is Beautiful
Involving People with Personal Experience
We know that the big things like funding and training need to be addressed to ensure that everyone receives good care at the end of their life, but we’re told time and again that it’s the small things that make a difference. We don’t have to change the world to provide responsive care – we can change things here and now in the small, thoughtful ways. This document explores ways of doing this.
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Publication
MDS Full Report for the year 2008/09
NCPC has now published its National Survey of Patient Activity Data for Specialist Palliative Care Services - MDS Full Report for the year 2008-09. This is the full report for the year 2008 - 2009 and contains vital statistics from services across the UK. This is the 14^th report from NCPC, since the introduction of the Minimum Data Sets Project in 1995.
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Publication
Specialist Palliative Care Workforce Survey 2008/09 – National Summary
This briefing provides an overview of the picture of the specialist palliative care workforce across England in 2008/9. We have included in the briefing some data from the workforce surveys undertaken in 2005 and 2007 to illustrate national trends. The End of Life Care Strategy for England identified workforce development as one of the essential factors to the future success of the Strategy’s implementation. This briefing provides a useful overview of some of the particular aspects needing further attention.
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DVD
Can you see me?
NCPC, in conjunction with Anchor, Alzheimer’s Society, Dementia UK, National Care Forum, St Christopher’s Hospice and Dying Matters have published a document identifying key priority areas for dementia within the DH’s quality markers for end of life care. The work was produced by NCPC’s Dementia Group and signposts to other resources which might help to meet each priority.
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Training:
Care to Learn:
The NCPC End of Life Care Training Programme Resource Pack
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