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MDS Full Report for the year 2011-2012

The National Council for Palliative Care
June 2013

Who Cares? Support for carers of people approaching the end of life

February 2013

Carers – by whom we mean people who provide unpaid support to a family member or friend – are a crucial but frequently overlooked part of end of life care. If more people are to be cared for and die at home (or in other community-based settings), much more thought needs to be given to how those caring for them are involved and supported.

In November 2012 NCPC came together with a group of voluntary sector partner organsiations to hold what we believe was the first ever national conference completely dedicated to discussing the needs of people caring for those approaching the end of life. This discussion document is based on that conference.

Guidance for doctors and nurses caring for people in the last days of life

NHS England
July 2013

Interim guidance following the publication of the report of the Liverpool Care Pathway Review, published by NHS England.

End of life care in extra care housing

September 2012

This is an updated version of the End of Life Care Learning Resource Pack, which provides practical information and advice for managers and support staff working in extra care housing schemes. It covers a range of issues relating to the care of residents with a life-limiting or progressive condition. 

The pack says: "By encouraging residents to identify life goals, enabling them to achieve them and focusing on living life to the full, a conversation can sometimes lead onto discussing the residents' wishes for the end of life.

"Enabling residents to live life to the full can mean that conversations about the end of life and determining a resident's wishes are an extension of focusing on outcomes, choice and control."

Topics covered by the pack include:

·         Identifying opportunities to start talking about end of life care

·         The core end of life path care pathway

·         Diversity issues such as care of the body after death and

·         An individual's capacity to make decisions as their condition deteriorates.
As well as case studies and 'top tips', the pack includes template local directories of key contacts and support plans.

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**P&P payable = £15/box(25 books/box)** 

Transforming end of life care in acute hospitals. The route to success ‘how to’ guide


This 'how to' guide builds upon the overarching framework set out in The route to success in end of life care - achieving quality in acute hospitals, published in 2010. The route to success highlighted best practice models developed by acute hospital Trusts, providing a comprehensive framework to enable hospitals to deliver high quality care to people at the end of life.

This 'how to' guide aims to help clinicians, managers and directors implement The route to success more effectively, drawing on valuable learning from the NHS Institute for Innovation and Improvement's Productive Ward: Releasing time to care™ series. 

This guide contains individual sections that can be worked on in any given order, dependent upon the individual hospital and its current end of life care provisions.

These can be downloaded here.

Hard copies can be ordered by email to 

**P&P payable £16 per box(14 packs/Box)**

Advance decisions to refuse treatment: A guide for health and social care professionals

January 2013

This guide is designed to help health and social care professionals understand and implement the law relating to advance decisions to refuse treatment (ADRT) contained in the Mental Capacity Act (2005).

This 2013 version replaces that published in September 2008 and covers:

·         How to make an advance decision to refuse treatment, who can make an advance decision, when a decision should be reviewed and how it can changed or withdrawn

·         What should be included

·         Rules applying to advance decisions to refuse life sustaining treatment and how they relate to other rules about decision-making

·         How to decide on the existence, validity and applicability of advance decisions and what healthcare professionals should do if an advance decision is not valid or applicable

·         The implications for healthcare professionals of advance care decisions, including situations where a healthcare professional has a conscientious objection to stopping or providing life-sustaining treatment

·         What happens if there is a disagreement about an advance decision.

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**P&P payable £20/box(80books per box)** 

Report and Financial Statements 31 March 2013

Life After Death

NPCP/Dying Matters/National Bereavement Alliance
January 2014

A joint publication from NCPC, Dying Matters and the National Bereavement Alliance. This briefing identifies six steps to address bereavement as a major public policy issue.

The Good Death Charter

The end of life care strategy: New ambitions

April 2014

2013 was the halfway point of the 10-year 2008 End of Life Care Strategy. To mark that, NCPC held a conference “Refreshing the strategy. The next five years for end of life care: what do we need to do?”. This report includes reflections from the conference day, and also additional recommendations and thoughts about what next in end of life care. It is intended as an initial contribution and will be followed by further publications during 2014-15.