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Improving the Experience of Hospital Admission for People with Neurological Conditions: Summary of Survey Results and Recommendations

In September 2009, the National Council for Palliative Care (NCPC), in conjunction with the Multiple Sclerosis Society, Parkinson's UK and Motor Neurone Disease Association, carried out a survey to find out more about the experiences of people with a neurological condition when admitted to hospital. The aim of the survey was to inform the group‟s priorities for the coming year.

A Guide to Involving patients, carers and the public in palliative care and end of life care services

NCPC / NHS Centre for Involvement

This guide is designed as a starting point for involving patients, carers and the public in palliative and end of life care. At the present time there are few examples of public involvement and so far, NCPC’s work has focussed mainly on involving patients and carers. The new coalition to raise public awareness about death, dying and bereavement and will be the first ever national public involvement program in this area, and learning from this will be shared in later editions of the guide. In addition, NCI’s remit is both patient and public involvement and many of the principles in this guide apply to patients, carers and the public.

Political Party Manifestos 2010

Summary of key pledges relating to palliative and end of life care.

End of Life Care Strategy

August 2006

The National Council for Palliative Care welcomes the proposal of the Department of Health to prepare a comprehensive strategy to develop and progress end of life care. It notes that the intention of the strategy is to establish the means whereby the Government’s commitments on palliative care outlined in its election manifesto can be delivered together with those on end of life care contained in the White Paper ‘Our health, our care, our say’.

Consultation on the NHS Constitution: Response from the National Council for Palliative Care


The right to good End of Life Care needs to be explicitly stated within the preamble to the NHS Constitution. Clear links should also be made to the patient pledges within the End of Life Care Strategy to ensure clear joined up policy messages are given to the public, patients, carers and staff.

User and Carer Input for End of Life Care Strategy


The End of Life Care Strategy board sent a questionnaire to NCPC. This was reviewed by the Service User Advisory Group, Policy Lead and Project Manager for User and Carer Involvement. Through feedback, a summarised version was formulated, which was approved by a member of the EOLC strategy board. This was sent by email to the following stakeholders with the option of people returning completed forms by mail or email.

The NHS Constitution: What You Need to Know

In January, for the first time, an NHS Constitution was published setting out the values and principles of the NHS. It sets out rights, pledges and responsibilities for patients, the public and staff, giving a clear picture of the standards of care which should be expected. This briefing sets out some of the most relevant principles for anyone commissioning, providing and using National Health Service care. Care providers should be prepared to work more in partnership, making sure patients are aware of their rights and that their actions and decisions support them.

The Response of the National Council for Palliative Care to the ‘Your Health, Your Care, Your Say’ Consultation

January 2006

Through the autumn, the Department of Health ran a major consultation to inflence the forthcoming White Paper on Health and Social Care (‘care outside hospital’). There were three main approches to this work: through appointed task forces of statutory and voluntary sector experts looking at particular themes; through a series of public engagement events; and through submissions from individuals or from organisations on behalf of their constituencies. NCPC was asked to ‘gather the views of people at the end of their lives’ known in the consultation as a ‘seldom heard group’ and as a result we have consulted with service users, subscribers and all key stakeholders. NCPC asked service users via our website for their views on key issues and solutions and held a key meeting of our User Liaison Group to seek their views. In addition, NCPC’s policy groups sought the views of the range of service users and stakeholders who require access to good palliative and end of life care. This publication reproduces the response sent by NCPC as its formal contribution to the consultation.

Sheltered and Extra Care Housing

Sarah Vallelly & Jasvinder Kaur
March 2008

An overview for health and social care professionals

Priorities for NCPC’s Strategic Direction to 2012


An overview of our mission,  key purpose and plans for the next few years.