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Small is Beautiful - Involving People with Personal Experience

Jo Black
June 2010

We know that the big things like funding and training need to be addressed to ensure that everyone receives good care at the end of their life, but we're told time and again that it's the small things that make a difference.  We don't have to change the world to provide responsive care - we can change things here and now in the small, thoughtful ways. This document explores ways of doing this.

Specialist Palliative Care Workforce Survey

NCPC, the NHS Information Centre and Mouchel
December 2011

NCPC Specialist Palliative Care Workforce Survey and Specialist Palliative Care Longitudinal Survey of English Cancer Networks.

Response to the Report of the House of Lords Select Committee on the Assisted Dying for the Terminally Ill Bill

August 2005

The House of Lords Select Committee on the Assisted Dying for the Terminally Ill Bill published its report on 4 April 2005. The National Council for Palliative Care (then called The National Council for Hospice and Specialist Palliative Care Services) was amongst the organisations that submitted written evidence on the Bill,1 and was subsequently invited to give oral evidence. This document sets out The National Council’s response to the Select Committee’s report.

Briefing Bulletin 15: The Funding Reality for 2006/7


The National Council for Palliative Care (NCPC) was invited by the National Partnership Group for Palliative Care (NPG) to build a picture of pressures on funding specialist palliative care services for the year 2006/07. This was to go beyond the monitoring of the extra £50 million allocation in order to identify any underlying problems with core funding, both for NHS services and for services in the voluntary sector.

An initial survey was undertaken early in 2006 but this revealed that a large proportion of services had not at that time been able to reach a final settlement. It was therefore agreed to undertake a second survey well into the financial year in order to be able to draw firmer conclusions about funding pressures. Accordingly, a further survey was carried out in August/September.

Implantable cardioverter defibrillators in patients who are reaching the end of life

Dr James Beattie
July 2007

This booklet has been written for any health professional who is involved in caring for dying patients with an active defibrillator device.

Building On Firm Foundations

NCPC / National End of Life Care Programme
June 2007

This guide which has been produced in collaboration with the National Council for Palliative Care suggests ways that care home staff working in partnership with other organisations have improved the care that the residents now receive, whether in assessing needs support for staff, new roles, education and training. It highlights where organisations have brought a number of these elements together in a creative way to improve care.

End of life care for people with dementia

October 2009

As our population ages, the number of people dying who have dementia will increase rapidly. Nationally and internationally it is acknowledged that care for this client group is poor. Overall the quality of end of life care available to these patients requires improved co-ordination both nationally and, as indicated through this project, locally in Haringey across health and social care agencies.

10 questions to ask if you are scrutinising end of life care for adults


This guide is one of a series designed to help Health Overview and Scrutiny Committees (OSCs) carry out their scrutiny work around various health, healthcare and social care topics.

End of Life Care in Advanced Kidney Disease: A Framework for Implementation

The Framework is about enabling people to achieve high quality end of life care, rather than ‘telling them what to do’. To achieve this, it explores the ‘kidney specific’ issues of end of life care focusing on patients opting for conservative kidney management and those “deteriorating despite” dialysis. The overarching aim is to help people with advanced kidney disease make informed choices about their needs for supportive and end of life care.

Priorities for Dementia Care within the End of Life Care Strategy’s Quality Markers and Measures for Commissioners

We have taken the seven headings for quality markers for end of life care aimed at commissioners and mapped these against areas of priority from a dementia perspective. There are several resources already available which impact on some of the priorities for dementia and end of life care. We have included sources of further information or support to help bring together many of these relevant documents.