Influencing toolkit

We have designed a toolkit to empower local people to push for the right end of life care services following reform of the health and social care system.

What about end of life care? is a practical toolkit designed to help the public and professionals understand the new health and care structures and develop the relationships required to secure high quality end of life care.

It contains:

  • A folder
  • An introductory booklet
  • A series of action sheets aimed at:
    1. End of life care champions
    2. Local HealthWatch bodies - produced with National Voices ( and Regional Voices (
    3. Clinical Commissioning Groups - produced in collaboration with the National End of Life Care Programme (
    4. Health and wellbeing boards
    5. Hospices and specialist palliative care providers - produced in collaboration with Help the Hospices ( and Sue Ryder (
    6. Housing and care providers - produced in collaboration with English Community Care Association (, National Care Forum ( and Housing 21 (


How to use the toolkit

This toolkit has been written with a variety of audiences in mind and its scope and tone is broad as a result. As well as being for our subscribers and partners it is intended to engage and inform decision-makers who may be completely new to palliative and end of life care. Indeed, we encourage you to give the appropriate section of the toolkit to the relevant key actors in your locality. The Action Sheets have been written with this purpose in mind - they can stand alone and be passed on.

The toolkit assumes no pre-existing knowledge. The Introduction booklet explains what is meant by palliative and end of life care, sets out ‘what good looks like’ according to the NICE Quality Standard, and suggests five outcomes to be prioritised as a starting point. We also provide some pointers on how progress against these outcomes can be measured. Again, it might be useful to pass on a copy of the Introduction booklet (alongside the relevant Action Sheet) to the person you are influencing, especially if they are new to the issue.

“This new toolkit will help people to keep end of life care a high priority within their local areas. It signposts to our new commissioning support resource which will complement the toolkit by providing comprehensive guidance relevant to both old and new commissioners alike.” - Claire Henry, Director, National End of Life Care Programme

“This is a fantastic resource both for those wishing to understand how to work more closely with the end of life care sector and for those working in end of life care itself to develop more effective and productive partnerships and influence meaningful changes.” - Emma Easton, Regions Health Project Manager, Regional Voices

“We all want good care at the end of our lives, for the people we love as much as for ourselves. This is why the toolkit is so important.” - Jules Acton, Director of Engagement, National Voices

“The new toolkit, just been launched by NCPC, is a much-needed resource and I would urge all care providers to take advantage of this resource because it will really help you to navigate through a new and emerging health and social care system.”   - Martin Green OBE, Chief Executive, ECCA and Chair, Care Providers Alliance

“Another excellent resource from NCPC to assist providers of housing and care to consider the needs of people at the end of life locally. New ways of working are emerging; this action sheet provides tips for providers to consider.”  - Sharon Blackburn, Policy and Communications Director, National Care Forum

“This toolkit is a valuable resource to help hospices and commissioners work together to get it right for people at the end of life, during a period of unprecedented change in our health and social care system.” - Jonathan Ellis, Director of Public Policy and Parliamentary Affairs, Help the Hospices



Ordering the toolkit

The toolkit was sent by post to NCPC subscribers when it was launched in August 2012.

For more information and to buy copies of toolkit please visit our online shop.

Pricing guide


NCPC Subscriber


A complete printed toolkit, including:

  • Delegate pack style folder
  • Introductory booklet, printed on high-quality thick paper
  • Free-standing Action Sheets, printed on high-quality thick paper.(First three and future  Action Sheets expected in Autumn 2012)



5 x complete toolkit print version


£40 (£10 saving!)

£80 (£20 saving!)

10 x complete toolkit print version

£75 (£25 saving!)

£150 (£50 saving!)

20 +

Price available upon request

Price available upon request


Electronic versions

Selected action sheets can be downloaded in PDF form for free. Visit and search 'toolkit'

Action sheets 5 (specialist palliative care providers) & 6 (housing and care providers) are available to NCPC subscribers only. Click here to login in and download.


Tell us what you did!

If you use the toolkit please report back to us. Please:


Help us to promote the toolkit


Used the toolkit in your locality and think others could do the same? Help us to promote its use by adding this banner to your signature or website:

Adding as a signature in Outlook:

  1. Click on the image above and, when taken to the original banner, right-click on the image and save it to your desktop
  2. In Outlook, go to Tools > Options > Mail Format (tab) >  Signatures
  3. In ‘edit signature’ scroll to the bottom your signature, click underneath it, then click on the insert picture button (image of a mountain and sun)
  4. Find the image on your desktop and click Insert
  5. Click on the image you’ve just added, then click hyperlink (the button next to the mountain) and enter, then press OK