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The NCPC documents below are available to download and print free of charge. Sample pages from our magazine, Inside Palliative Care, are also available as free downloads. Click here for more information.
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The aims of this publication are to clarify the definition of Advanced Care Planning and related terms, to provide practical guidance on core competences, education and training of different professional groups and related ethical and legal implication and to suggest next steps. NHS End of Life Care Programme publication supported by NCPC. Feb 2007.
To download this publication click here.  (378KB)
November 2006. To download this document click here. (159KB)
This joint publication between NCPC and the NHS End of Life Care Programme suggests ways that care home staff working in partnership with other organisations have improved the care that the residents now receive, whether in assessing needs support for staff, new roles, education and training. It highlights where organisations have brought a number of these elements together in a creative way to improve care.
June 2007. To download this publication click here. (845KB)
These guidelines build on the Quality Requirements in the National Service Framework (NSF) for Long-term Neurological Conditions (LTNCs) to explore the interaction between specialist neurology, rehabilitation and palliative care services, and how they may best work together to provide long-term support for people with LTNCs and the family members who care for them. The guidelines recommend a collaborative model for interaction between the different specialties involved in the care of people with LTNCs.
March 2008. To download this publication click here. (Link to RCP Website)
The aim of this booklet published by the British Heart Foundation is to raise awareness of the potential dilemmas that devices such as ICDs introduce in advanced disease management, and to promote discussion about the possibility of deactivating the defibrillator function of the ICD in patients who are reaching the end of their life.
July 2007, 12 Pages. To download this publication for free click here. (120KB)
Care home managers will be better able to provide the best levels of treatment and support for
residents at the end of life thanks to the availability of a new guide which provides details about
practical steps that can be taken to improve care.
The NHS End of Life Care Programme, working in partnership with the NCPC, has produced a guide that will help care homes to care for residents' physical,
psychological, social and spiritual needs to achieve the best quality of life for patients and their
families, even when this is likely to be short. The Introductory guide to end of life care in care homes is aimed at care home managers and staff interested in improving care for residents in the final stages of life.
March 2006, 20 Pages. To download this publication for free click here. (462KB)
NCPC has now published its "National Survey of Patient Activity Data for Specialist Palliative Care Services - MDS Full Report for the year 2006-07 ". This contains vital statistics from services across the UK. This is the 12th report from NCPC, since the introduction of the Minimum Data Sets Project in 1995.
December 2007, 36 Pages. To download sample pages from this publication click here. (313KB)
NCPC has now published its "National Survey of Patient Activity Data for Specialist Palliative Care Services - MDS Full Report for the year 2005-06 ". This is the full report for the year 2005 - 2006 and contains vital statistics from services across the UK. This is the eleventh report from NCPC, since the introduction of the Minimum Data Sets Project in 1995.
November 2006, 40 Pages. To download this publication for free click here. (429KB)
Through the Autumn, the Department of Health ran a major consultation to influence the forthcoming White Paper on Health and Social Care. NCPC was asked to 'gather the views of people at the end of their lives', and as a result we have consulted with service users, subscribers and all key stakeholders. This publication reproduces the response sent by NCPC as its formal contribution to the consultation.
January 2006. 6 pages. To download this publication, click here (45KB)
This document summarises the input gained by NCPC from patients and carers in response to the End of Life Care Strategy Questionnaire. People were asked to record their thoughts and opinions on the following aspects of end of life: initial discussion about end of life care, assessing the needs of people and their partner/carers, planning the individuals’ care, deciding where to live and receiving additional care or support, ensuring services are well integrated, last days of life, care after death and bereavement support.
June 2007. To download this document click here. (90KB)
The NCPC welcomes the proposal of the
Department of Health to prepare a comprehensive strategy to develop and
progress end of life care. It notes that the intention of the strategy is to
establish the means whereby the Government’s commitments on palliative
care outlined in its election manifesto can be delivered together with those
on end of life care contained in the White Paper ‘Our health, our care, our
say’.
August 2006, 34 Pages. To download this document click here. (705KB)
In January 2005, NCPC launched its Palliative Care Manifesto for all parties to fully support and champion at the general election expected in 2005. The manifesto builds on the recommendations in the all-party House of Commons Health Committee report of July 2004 and is based upon the principle of extending palliative care to all those who need it.
To download the manifesto for free, click here (55KB)
For further information on our Palliative Care Manifesto, click here
Promote was a joint working project between NCPC, King’s College London and St Christopher’s Hospice. The projects aim was to develop suitable mechanisms for for monitoring regularly the quality of care provided to patients with progressive or terminal illness, and for their families and to investigate the best ways of feeding back this information to service providers and commissioners. The Clinical Governance and Quality Committee of NCPC gave encouragement to this important project from its inception and was pleased to be associated with its findings.
To download this publication for free, click here (214KB)
The Older People’s Policy Group of NCPC has been looking at the specific challenges and opportunities of meeting
people’s palliative care needs in the housing sector. Sheltered and Extra Care Housing: an overview for health and social
care professionals is the first publication in this series of work. It gives details of the housing models that exist. It emphasises that sheltered and extra care housing are important resources in providing for the evolving need of an ageing population.
NCPC/Housing21, March 2008 (A4, 10 pages) ISBN 987 1 898915 63 8
To download this publication for free, click here (820KB)
Reports on two surveys commissioned by the Department of Health in 1999 to obtain a picture of the current level of provision for palliative care, and Health Authority views about the adequacy of and need for such services. It was envisaged that together with the Minimum Data Sets data, these surveys would assist the New Opportunities Fund in its consideration of bids for funding palliative care developments and provide an overall picture of the extent of palliative care provision across the country to help inform future development of national policy.
NCPC/Hospice Information Service/Department of Health, August 2000 (A4, 28 pages) ISBN 1 898915 25 3
To download this publication for free, click here (116KB)
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Advanced Care Planning: A Guide for Health and Social Care Staff 