New toolkit to influence new local decision-makers

17 August 2012
The National Council for Palliative Care (NCPC) has today launched a toolkit to empower local people to push for the right end of life care services following reform of the health and social care system.

What about end of life care? is a practical toolkit designed to help the public and professionals understand the new health and care structures and develop the relationships required to secure high quality end of life care. It contains a series of action sheets aimed at decision-makers such as Clinical Commissioning Groups and influencers such as local HealthWatch bodies and individual end of life care champions. Action sheets for other key players, including health and wellbeing boards and education and training providers, will be released later this year.  

Simon Chapman, Director of Policy and Parliamentary Affairs at NCPC, said:

“There has been significant change in the health and social care landscape in England since the coalition Government took power in 2010. New structures, institutions and frameworks have been created by the Health and Social Care Act, and there are new decision-makers and budget-holders with revised responsibilities and accountabilities.

“The sense of uncertainty about the exact nature of the reformed system is now beginning to lift, and it is time to translate government policy into practice. We have produced the What about end of life care? toolkit to help local people ensure high quality end of life care is delivered locally.”

Claire Henry, Director, National End of Life Care Programme said:

“We have come a long way since the End of Life Care Strategy was published in 2008, and have seen consistent and sustained improvements in end of life care across the country. However, there is still a long way to go in achieving the aims of this 10 year strategy and delivering the highest quality care to people who are dying - in all areas all of the time.

“The rapidly changing landscape in which we are working poses a substantial risk to the scale and pace of change that we have seen to date. We must maintain the momentum that has been built in improving end of life care. This new toolkit will help people to keep end of life care a high priority within their local areas. It signposts to our new commissioning support resource, due out on 16th October, which will complement the toolkit by providing comprehensive guidance relevant to both old and new commissioners alike.” 

Emma Easton, Regions Health Project Manager, Regional Voices said:

“This is a fantastic resource both for those wishing to understand how to work more closely with the end of life care sector and for those working in end of life care itself to develop more effective and productive partnerships and influence meaningful changes.”

Jules Acton, Director of Engagement, National Voices, said:

“We all want good care at the end of our lives, for the people we love as much as for ourselves. This is why the toolkit is so important.”


  1. What about end of life care? is published by the National Council for Palliative Care (NCPC). NCPC is the umbrella charity for all those involved in palliative, end of life and hospice care in England, Wales and Northern Ireland. It also leads the Dying Matters Coalition ( which aims to help transform public attitudes towards dying, death and bereavement in England.
  2. Action Sheet 2 (local HealthWatch) was produced in collaboration with National Voices ( and Regional Voices ( Action Sheet 3 (CCGs) was produced in collaboration with the National End of Life Care Programme (
  3. A hardcopy of the toolkit has been sent to NCPC subscribers. Find out how to order more copies at 
  4. For media enquiries please contact Joe Levenson, Director of Communications at NCPC on 020 7697 1520.


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