Marie Curie to lead Palliative and end of life care Priority Setting Partnership

16 October 2013
New initiative aims to find out what palliative and end of life care research is most important to public and professionals.

Initiated by Marie Curie Cancer Care, a large number of organisations have come together to form “the Palliative and end of life care Priority Setting Partnership” (PeolcPSP) with the James Lind Alliance. This means that for the first time, people directly affected will get the chance to have their say in setting research priorities for palliative and end of life care. The partnership is particularly seeking to hear from people who are likely to be in the last years of life, current and bereaved carers, their families, and frontline social and healthcare professionals.

Palliative and end of life care is an under-researched area and requires greater attention and focus. The aim of the partnership is to ensure that future research brings the greatest possible benefit to people at the end of life, and their carers and families, by identifying what questions are of the greatest importance to them.

Co-funding partners are:

  • Marie Curie Cancer Care
  • Chief Scientist Office (CSO)
  • National Institute for Health Research (NIHR)
  • Motor Neurone Disease Association (MND Association)
  • National Institute for Social Care and Health Research (NISCHR)
  • All Ireland Institute of Hospice and Palliative Care (funded by Health and Social Care, Northern Ireland and the Health Research Board, Ireland)
  • Macmillan Cancer Support
  • Economic and Social Research Council
  • Medical Research Council
  • Cancer Research UK

Dr Bill Noble, Marie Curie Cancer Care Medical Director and past president of the Association for Palliative Medicine of Great Britain and Ireland, said: “It is essential to identify clear research priorities, for ourselves and other funding bodies, so we can support the most important research and make the most out of the money we spend.

“For research to make a fundamental difference, it is vital funders and researchers focus on what matters most to people with terminal illnesses, their families, carers, and health and social care professionals.”

NCPC welcomes this initiative, and looks forward to participating and supporting the Partnership - our Community Involvement Manager, Jo Black, is a member of the Steering Group. 

For more information or to get involved, email or telephone on 020 7091 4153.

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