'Who Cares?' conference - 6th November

Who cares?
Support for carers of people approaching the end of life

Date:  Tuesday 6th November 2012

Location: Holiday Inn Regents Park, London W1W 5EE

Programme: To view the full event programme click here.

Presentation slides: To view the presentation slides from the event please see below:
For plenary presentation slides & Workshop A (At home) slides please click here
Workshop B (In care homes) slides please click here
Workshop D (In hospices) slides please click here


'Caring - a personal perspective' film:
To view the video that was shown at the event, please click here

Attendance at this event was worth 5 CPD credits.

Why this conference?

The Government’s first national survey of end of life care experiences revealed that only half of the sons, daughters, partners, siblings, parents and friends caring for a dying person receive the help they need. The needs of unpaid carers are too often overlooked or left unmet by ‘the system’. This can have a devastating impact on people’s experience of caring and bereavement. It also makes it difficult, if not impossible, to achieve the Government’s ambition of allowing more people to be cared for and die in their preferred place, which is usually at home. A home death can put enormous pressure on carers on a 24/7 basis.

This national conference, organised by leading charities, explores the needs of carers of people approaching the end of life and some of the particular issues, concerns and dilemmas that accompany this stage of caring. It will look at how the national End of Life Care Strategy (DH, 2008) and Carers Strategy (2008) can be brought together and, by showcasing good practice examples, how they can be translated into a reality on the ground.

This conference...

     - Helped all those in contact with people approaching the end of life to identify practical ways of involving and supporting carers
     - Helped those in contact with carers to understand the issues they face, and how to better support carers through this
     - Enabled carers and former carers with good and bad experiences of end of life care to share their stories and improve services
     - Enabled professionals working in the field to share good practice
     - Highlighted key issues and levers to local and national commissioners and decision makers to ensure people approaching the end of life and their carers have a positive experience of care
     - Enabled delegates to establish action plans to develop support for carers


Expert speakers included:

•    Thea Stein, Chief Executive, Carers Trust
•    Simon Chapman, Director of Policy & Parliamentary Affairs, NCPC & Dying Matters
•    Dr Dawn Chaplin, Co-chair, Bereavement Services Association & Co-founder, National Working Alliance for Bereavement
•    Dr Christopher Bailey, University of Southampton
•    Personal perspectives from carers and former carers
•    And many more..! Please click here to view the full list of speakers.

Event Workshops - Making it happen in every setting:

The below workshops took place once between 11.25 - 12.35.

•    A: At home
Linsey Reynolds, Programme Manager, Age UK


•    B: In care homes
Tes Smith, Social Care Programme Manager, Macmillan Cancer Support
Helen de Renzie-Brett, Head of Education, Dorothy House Hospice Care

•    C: In hospital (no slides used)
Lucy Whitman, Involvement Officer, NCPC
Roberta Lovick, carer

•    D: In hospices
Steve Jenkin, Director of Health and Social Care, Sue Ryder
Samantha Cheverton, Regional Manager North, Sue Ryder


To view the full event programme please click here
.