Transitions

A growing number of children and young adults with life-limiting and life-threatening conditions are now living into adulthood. These individuals and their families often find themselves caught between children’s and adult palliative care services. While there are examples of excellent practice, there is still limited availability of appropriate services for young people.

NCPC, ACT, Children’s Hospices UK and Help the Hospices set up a Transition Partnership. Together we are looking at the specific challenges of transition between children’s and adult services. The partnership is working to improve understanding of transition and development of services.

We are:

• Supporting the rollout of ACT’s Transition Care Pathway across the SHAs. This pathway focuses on three key sections: recognising young people’s need to move on to adult services; moving on and end-of-life.
• Working with the University of York on research to improve understanding of transition
• Providing a forum for informing and influencing policy and practice.

The transition partnership held a national conference to consider aspects of transition for young people with life limiting and life threatening conditions. More information about the conference and copies of the presentations are available on Help the Hospices’ website here.

The Transition Partnership produces a regular newsletter, providing updates on the work and contacts for the organisations involved. It is free to download and we would value your comments for future editions.

Previous editions of the Transition Partnership newsletter

Issue 3, September 2009	(3.33MB)
Issue 2, April 2009	(3.37MB)
Issue 1, November 2008	(2.20MB)