Ask me what I want

Transforming End of Life Care in Partnership with Patients and Carers

14^th July 2009
Holiday Inn Bloomsbury, Coram Street, London WC1N 1HT

The views of patients, their carers and others must be taken into account when designing, planning, delivering and improving health and social care services. How can we do this in End of Life Care and how will it help us to provide better services? This one day conference showcased examples of how involvement has helped transform end of life care services. It provided practical guidance, along with opportunities to share successes and explore challenges.

This conference:

• Explored the interface between involving service users and end of life care
• Demonstrated how involving people can enrich and shape end of life care through practical examples
• Shared guidance from NCPC’s user involvement project
• Provided opportunities for networking and shared learning

	Programme Outline				187KB
	Engaging the Country		Joan Saddler Director of Patient and Public Affairs, Department of Health		510KB
	Asking the Experts: User Involvement in Practice		Jo Black Project Manager – User and Carer involvement, National Council for Palliative Care		422KB
	Involving People in Policy and Practice		Jayne Taylor Director of Organisational Development and Learning, The National Centre for Involvement		225KB
	Reaching Out: Engaging with Diverse Communities		Dr Heather Richardson Director of Care Services, St Joseph’s Hospice		38KB
	Masterclasses   Making Things Clear: Personalising information provision for patients and carers through Information Prescriptions Sheila Williamson Information Prescription Project Manager, NHS Nottingham City Andy Millward Service User  1.17MB   Life After Death: Developing culturally sensitive bereavement services in partnership with local communities Lesley Lopez Head of Patient Services Jessie Winyard Chair of Patient Panel, West Herts Hospitals NHS Trust     Having The Conversation: End of life conversations with older people in care homes Jo Edler Policy Projects Officer, Help the Aged  82KB   Notes    76KB   Responsive Commissioning: Commissioning personalised end of life care services in partnership with service users Sue Townley Project Manager, Commissioning Bath and North East Somerset PCT
	Transformation in Action Presentation Findlay Report – intro and recommendations Report: Chronology of Events Report: Communication Diagrams		Helen Findlay Service User. Member of NCPC Service User Advisory Group
	A Personal Experience		Esther Rantzen CBE