APPG: July 2011

Living and dying well with dementia

A joint meeting with the All Party Parliamentary Group on Dementia

The July 12th saw the first coming together of the parliamentary groups on Hospice and Palliative Care and dementia, to illustrate and discuss the urgent need to fully join up the two national strategies.

Barbara Pointon MBE shared her personal experience of looking after her husband Malcolm through until the end of his life, and Prof Alistair Burns and Prof Sir Mike Richards, the national clinical directors for dementia and end of life care, highlighted the urgent need for innovative commissioning which deliver person-centred, timely care and support for people with dementia and their carers.

NCPC and the NHS National End of Life Care Programme were delighted to launch at the event the new booklet in the Difficult Conversations series. The publication, based on fifty conversations with people with dementia, carers and former carers, is designed to help professionals and carers of people with dementia open up conversations about end of life wishes, especially early on in the condition. You can find out more and download copies of the publication here.

Baroness Sally Greengross, Chair of the All Party Parliamentary Group on Dementia, discussed the findings of its inquiry into how to make dementia care services cost effective while improving outcomes for people with dementia. The report, The £20 billion question: An inquiry into improving lives through cost-effective dementia services, was launched on the same day as the joint meeting. You can download copies here.

We had an excellent attendance in the public seats and lively question and answer sessions. We thank Fabian Hamilton MP and Baroness Sally Greengross for chairing the event.


We held our annual election of Officers at the event, welcoming for another term our Chair Fabian Hamilton MP, Vice Chair Baroness Ilora Finlay, Secretary Jim Dobbin MP and Treasurer Stuart Andrew MP.

We welcome Margot James MP, a keen supporter of the group since her election to parliament in 2010, as a new Vice Chair.

Baroness Julia Neuberger stepped down from the group. Julia was thanked for all of her hard work.

APPG July montage